
Tonight I attended an event for a legislative project I've been working on for psoriasis and psoriatic arthritis. The bill is designed to prompt the federal government's health institutes to focus research on psoriasis research, but since certain members of congress cringe when you tell these places to do specific things, you need to exact positive re-enforcement like you would with a child learning to like broccoli or mushrooms. And with many disease causes there are celebrities attached to them, and attached to psoriasis we are lucky, and I will explain, to have the Grammy award winning singer LeAnn Rimes.
Tomorrow Ms. Rimes makes her way across the Hill making close to 12 visits, which in itself is amazing. Then she will be joining me and my boss for a briefing aimed at key committee staff. Tonight I got the chance to meet her, and found her warm, smart, sincere and above solid on her 4 inch heels. We talked about her story, and then her use of time the next day and what to expect; making sure she knew the day was put together to maximize her efforts and her story. After about six minutes talking to her was when I realized who I was talking to. And it was after that moment I told her she should wear comfortable shoes. Apparently I was not the first, or the last. Lord.
Alyssa, a 14 year old from Texas, will accompany Ms. Rimes tomorrow for part of the day, but also making 7 of her own visits to both the Senate and House side. The ability for someone to share their health care story to strangers always astounds me, especially when they are young. Sometimes they stare at you glassy-eyed and breathlessly share their story, and sometimes, like Alyssa, they stand up there and transform themselves into a storybook of their plight, their pain, and their suffering. Alyssa was amazing and I am thankful for that fact that she's on our side.
I always look forward to meetings with the psoriasis folk because I know that we are all on the same team. We have one goal and there we bring no compromised positions to the table. Because of that I can always give 100% in my meetings with them and have in every step in this game. After three years we greet each other with hugs and hearty handshakes, and I don't think I've gotten better thank yous and accolades personally or in front of my boss than from them, and that means a lot to me personally, but also to the project and to the boss man. Standing in the back of the room I was sharing thoughts and strategy with the principal lobbyist on the project and she says to me, "We wish you a long and happy life on the Hill, but if you ever think of leaving, for whatever reason, come see me first." That statement means a lot, because up till this point I hadn't heard that kind of professional credit and appreciation before, and that made this week worth it.
I will have more to share about tomorrow, I'm sure.